A Legacy of Strength:
The Story Behind the Collinson Foundation
The Collinson Foundation was created to bring hope, support, and awareness to those living with Patulous Eustachian Tube (PET).
Craig Collinson was a vibrant and passionate individual who dedicated much of his life to helping others improve their health. Through his fitness-focused YouTube channel, his published book on nutrition, and his personal coaching, Craig inspired many people to achieve their fitness and wellness goals.
After successfully losing weight and transforming his health, Craig developed PET, a rare and often misunderstood condition affecting the ear. The disorder dramatically changed his life, bringing persistent and debilitating symptoms that severely impacted his daily well-being.
Despite searching tirelessly for answers and relief, Craig struggled to find effective treatment options or adequate support. The condition brought significant daily challenges and took a profound toll on his quality of life.
Over time, the weight of these ongoing struggles deeply affected his mental health. Craig died in March 2025.
His story is shared in the hope that greater awareness, research, and support can help others living with PET and other chronic conditions feel less alone. Through this mission, The Collinson Foundation works to raise awareness, advocate for research, and build a community where those affected by PET can find understanding and help.
CRAIG COLLINSON
December 22, 1982 - March 20, 2025
The idea for the first nonprofit organization dedicated entirely to PET emerged after Craig’s passing. What began as a heartfelt Facebook post from Stephie expressing that no one else should have to suffer this way quickly resonated with people around the world. PET sufferers responded, stepped forward, and helped build this organization from the ground up.
Until now, there has been no single organization focused solely on PET or on supporting the people affected by it. Those living with the condition, especially individuals with complex or chronic cases, often have very few places to turn for reliable information, medical guidance, or community support. Only a small number of doctors worldwide have deep knowledge of PET, making accurate diagnosis and effective treatment difficult for many.
We are determined to change that.
CFPET was created to educate, support, and advocate for those living with this condition, as well as the medical professionals who treat it. PET affects far more than the individual. It impacts families, relationships, careers, and daily life. Many sufferers experience isolation, depression, and difficulty performing everyday tasks, including work and caring for loved ones.
This must change.
We aim to open pathways for increased research, improved physician education, and broader public awareness. Medical professionals need greater understanding of PET’s symptoms, diagnosis, treatment options, and long-term management. In severe cases, PET needs to be recognized as a disability.
Those affected must be heard and believed. PET is not a psychological one, though its impact on mental health can be profound.
Thank you for joining us on this journey. By raising our voices together, we will silence the echo.
Our Team
Each member of the CFPET team brings unique skills and experience to the organization.
Collectively, the team has undergone more than 25 PET-related surgeries, providing firsthand insight into the challenges of living with this condition. Along with deep personal knowledge of PET, the team also brings extensive professional experience in building and running successful organizations. From corporate law to nonprofit program coordination, our members combine lived experience with professional expertise.
Together, this dedicated team is committed to advancing awareness, support, and progress for the PET community.
Stephie Dunford
President
Emily Rodvold
Vice President
Hannah Quackenbush
Secretary
Adam Kaiser
Legal Counsel
Andrew Oosterhouse
Treasurer
