A Legacy of Strength:
The Story Behind the Collinson Foundation
The Collinson Foundation was created to bring hope, support, and awareness to those living with Patulous Eustachian Tube Dysfunction (pETD).
Craig Collinson was a vibrant and passionate individual who dedicated much of his life to helping others improve their health. Through his fitness-focused YouTube channel, his published book on nutrition, and his personal coaching, Craig inspired many people to achieve their fitness and wellness goals.
After successfully losing weight and transforming his health, Craig developed pETD, a rare and often misunderstood condition affecting the ear. The disorder dramatically changed his life, bringing persistent and debilitating symptoms that severely impacted his daily well-being.
Despite searching tirelessly for answers and relief, Craig struggled to find effective treatment options or adequate support. The condition brought significant daily challenges and took a profound toll on his quality of life.
Over time, the weight of these ongoing struggles deeply affected his mental health. Craig died in March 2025.
His story is shared in the hope that greater awareness, research, and support can help others living with pETD and other chronic conditions feel less alone. Through this mission, The Collinson Foundation works to raise awareness, advocate for research, and build a community where those affected by pETD can find understanding and help.
Mission Statement
Our mission is to advance understanding, treatment, and support for those living with Patulous Eustachian Tube Dysfunction (pETD). We achieve this by educating the public, funding research, and fostering a patient-led community of shared experiences and hope.
CRAIG COLLINSON
December 22, 1982 - March 20, 2025
Our Team
Collectively, the team has undergone more than 25 pET-related surgeries, providing firsthand insight into the challenges of living with this condition. Along with deep personal knowledge of pETD, the team also brings extensive professional experience in building and running successful organizations. From corporate law to nonprofit program coordination, our members combine lived experience with professional expertise.
Together, this dedicated team is committed to advancing awareness, support, and progress for the pETD community.
Stephie Dunford
President
Emily Rodvold
Vice President
Hannah Quackenbush
Secretary
Adam Kaiser
Legal Counsel
Andrew Oosterhouse
Treasurer