Upcoming Events
Echo-Heads Unite!
Join us for the first monthly Echo-Head virtual meet-up (because we all know that meeting people IRL is just too hard and too loud!)! Join us for a discussion on navigating the diagnostic pathway and how to manage the roadblocks and speed bumps you encounter along the way
Discussion will be led by Stephie, and the goal is to share different ways we have gotten to a successful and accurate diagnosis, managing insurance, how to deal with travel, and most importantly, how you found your doctor.
Open to all!
Meeting link will be provided closer to the event
PET With The Pros - Getting relief from Patulend
Join our resident expert and foundation volunteer, Simone Kriener, for an opportunity to learn about how PatulEND works, who it may benefit, possible side effects, how to make your own version, and most importantly, how to use it properly to “hit the spot”.
PatulEND, and similar DIY recipes, are game changers for many sufferers of PET.
Meeting link will be provided closer to the event.
Do you have a suggestion for an event, speaker, or support group topic?
Please submit a form, and we will follow up with you. Thank you for participating in the CFPET!