Upcoming Events
September Echo-Heads Unite with Emily
Join us for a chance to talk to fellow Echo-Heads and learn from the experiences of others! If you are having a hard time, have recently had a success, or simply want to listen, please join us - ALL are welcome! No need to have cameras on if you do not want.
Time Zone Conversion:
7:00 PM EST
6:00 PM CST
5:00 PM MST
4:00 PM PST
Echo Heads Unite with Emily Thursday, September 3 · 7:00 – 8:00pm Time zone: America/New_York Google Meet joining info Video call link: https://meet.google.com/oab-tbtz-jbv Or dial: (US) +1 234-339-0045 PIN: 989 343 573# More phone numbers: https://tel.meet/oab-tbtz-jbv?pin=1219894409962
October Echo-Heads Unite with Stephie
Join us for a chance to talk to fellow Echo-Heads and learn from the experiences of others! If you are having a hard time, have recently had a success, or simply want to listen, please join us - ALL are welcome! No need to have cameras on if you do not want.
Time Zone Conversion:
4:00 PM BST
11:00 AM EST
10:00 AM CST
9:00 AM MST
8:00 AM PST
Echo Heads Unite with Stephie Saturday, October 3 · 11:00am – 12:00pm Time zone: America/New_York Google Meet joining info Video call link: https://meet.google.com/gme-gwef-yjh Or dial: (US) +1 209-841-0106 PIN: 555 352 567# More phone numbers: https://tel.meet/gme-gwef-yjh?pin=7134832965226
July Echo-Heads Unite! Dealing with summer travel and events
June 13, 11:900-12:00 Eastern Standard Time Zone (New York)
Join us for our monthly Echo-Head virtual meet-up (because we all know that meeting people IRL is just too hard and too loud!)! Join us for a discussion on navigating the day-to-day while living with PET
Echo-Heads Unite!
June 13, 11:900-12:00 Eastern Standard Time Zone (New York)
Join us for our monthly Echo-Head virtual meet-up (because we all know that meeting people IRL is just too hard and too loud!)! Join us for a discussion on navigating the day-to-day while living with PET
PET with the PROs!
Come and join Dr. Mario Padilla, from Waterford University Hospital in Ireland, as he talks about PET and dizziness, as well as the state of PET treatment in the UK and Europe
Dr Padilla is an active participant in the PET community, by both asking questions about the conditions, and sharing his medical knowledge about root causes, effects, and treatments.
The session will be live on Google Meet (info below). Bring your questions!!
________
Saturday, June 13 · 11:00am – 12:00pm Eastern Standard Time (New York)Time zone: America/New_YorkGoogle Meet joining infoVideo call link: https://meet.google.com/xrk-ckvc-vowOr dial: (US) +1 321-529-9025 PIN: 283 954 760#More phone numbers: https://tel.meet/xrk-ckvc-vow?pin=9546478225032
PET With The Pros - Getting relief from Patulend
Join our resident expert and foundation volunteer, Simone Kriener, for an opportunity to learn about how PatulEND works, who it may benefit, possible side effects, how to make your own version, and most importantly, how to use it properly to “hit the spot”.
PatulEND, and similar DIY recipes, are game changers for many sufferers of PET.
Meeting link will be provided closer to the event.
Echo-Heads Unite!
Join us for the first monthly Echo-Head virtual meet-up (because we all know that meeting people IRL is just too hard and too loud!)! Join us for a discussion on navigating the diagnostic pathway and how to manage the roadblocks and speed bumps you encounter along the way
Discussion will be led by Stephie, and the goal is to share different ways we have gotten to a successful and accurate diagnosis, managing insurance, how to deal with travel, and most importantly, how you found your doctor.
Open to all!
Meeting link will be provided closer to the event
Do you have a suggestion for an event, speaker, or support group topic?
Please submit a form, and we will follow up with you. Thank you for participating in the CFPET!