Upcoming Events


Echo-Heads Unite!
Jun
20

Echo-Heads Unite!

June 13, 11:900-12:00 Eastern Standard Time Zone (New York)

Join us for our monthly Echo-Head virtual meet-up (because we all know that meeting people IRL is just too hard and too loud!)! Join us for a discussion on navigating the day-to-day while living with PET

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PET with the PROs!
Jun
13

PET with the PROs!

Come and join Dr. Mario Padilla, from Waterford University Hospital in Ireland, as he talks about PET and dizziness, as well as the state of PET treatment in the UK and Europe

Dr Padilla is an active participant in the PET community, by both asking questions about the conditions, and sharing his medical knowledge about root causes, effects, and treatments.

The session will be live on Google Meet (info below). Bring your questions!!

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Saturday, June 13 · 11:00am – 12:00pm Eastern Standard Time (New York)
Time zone: America/New_York
Google Meet joining info
Video call link: https://meet.google.com/xrk-ckvc-vow
Or dial: ‪(US) +1 321-529-9025‬ PIN: ‪283 954 760‬#
More phone numbers: https://tel.meet/xrk-ckvc-vow?pin=9546478225032


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PET With The Pros - Getting relief from Patulend
Apr
25

PET With The Pros - Getting relief from Patulend

Join our resident expert and foundation volunteer, Simone Kriener, for an opportunity to learn about how PatulEND works, who it may benefit, possible side effects, how to make your own version, and most importantly, how to use it properly to “hit the spot”.

PatulEND, and similar DIY recipes, are game changers for many sufferers of PET.

Meeting link will be provided closer to the event.

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Echo-Heads Unite!
Apr
18

Echo-Heads Unite!

Join us for the first monthly Echo-Head virtual meet-up (because we all know that meeting people IRL is just too hard and too loud!)! Join us for a discussion on navigating the diagnostic pathway and how to manage the roadblocks and speed bumps you encounter along the way

Discussion will be led by Stephie, and the goal is to share different ways we have gotten to a successful and accurate diagnosis, managing insurance, how to deal with travel, and most importantly, how you found your doctor.

Open to all!
Meeting link will be provided closer to the event

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Do you have a suggestion for an event, speaker, or support group topic?

Please submit a form, and we will follow up with you. Thank you for participating in the CFPET!